Supporting organisations

• Children’s Hospice South West: www.chsw.org.uk
• Jessie May Trust: www.jessiemay.org.uk
• Together for Short Lives: www.togetherforshortlives.org.uk
• Contact a Family: www.cafamily.org.uk
• SMA Trust: www.smatrust.org
• Ehlers Danlos Syndrome: www.ehlers-danlos.org
• EDS International: www.internationaleds.org
• Spinal Muscular Atrophy Support: www.smasupportuk.org.uk
• Muscular Dystropy UK: www.musculardystrophy.org
• HMSA: www.hypermobility.org
• Facing Illness Together (F.I.T): www.facingillness.wix.com/f-i-t
• Compassionate friends: www.tcf.org.uk 0345 123 2304 helpline
• CRUSE https://www.cruse.org.uk/ 0808 808 1677
• Samaritans https://www.samaritans.org/ 116 123 (UK)
• MIND https://www.mind.org.uk/ 0300 123 3393

Setting up a support group

Have you ever thought of setting up a Support Group? Download our guidance sheet which outlines the steps you need to take.